If you are caring for a friend or family member who has a rare disease or disorder, or if you have a professional interest in rare disorders, the website of the New Zealand Organisation for Rare Disorders should be your first port of call.
Their website is a one stop shop full of helpful information to assist families to find out essential information about disorders that may be affecting their lives. Here you will find a comprehensive database of different support groups, with contact and website details included.
You can also read stories from ordinary New Zealanders who have found themselves challenged with a rare disorder, or you find out about research that has been carried out, or stay abreast of NZORD’s News and Issues, including the Organisation's Press Releases and Submissions.
You can also access contact details of carer support groups in your area at our website. Or, download our helpful NZ Guide, a one page PDF with contact details for a wide range of community and not for profit organisations.