Caring for a loved one with a rare disorder?

If you are caring for a friend or whānau / family member with a rare disease or disorder, or if you have a professional interest in rare disorders, Rare Disorders NZ (RDNZ) should be your first port of call.

RDNZ’s website is full of helpful information to assist families with essential information about disorders that may be affecting their lives.

• Comprehensive database of different support groups
• Read stories from ordinary New Zealanders who have found themselves challenged with a rare disorder
• Find out more about research that has been carried out
• Stay abreast of RDNZ’s News and Issues.

You can also access contact details of carer support groups in your area here.